Well, it's been a little bit since our last post but it's been a whirlwind around here. Hopefully, things will return to DULL and BORING real soon... we can't wait!! Jackson continues to do really well. We did have 2 doctor appointments last week. His cardiologist said that everything still looked and sounded good, so no changes for now. The place on his chest that we were concerned about is still there-really red and scabbed, so we're still watching it closely and putting antibiotic cream on it. We're still limiting our exposure to crowds and probably still will for a little bit longer. It's been really hard "limiting his activity". I feel like we're constantly saying "NO, you can't do that" or "Get down from there". He's been a pretty good sport about it though. He does seem to need a nap since surgery which we think is related to him lying around for so long, but we have seen a big improvement in his activity tolerance. Before surgery, if he was running for a long distance he might would have to stop and rest halfway there. Tonight we went to Darrin's softball game and Jackson was able to run to and back without resting and he was barely winded. This is a big improvement for him! I don't have any new pics, but we'll try to work on that this week. So for now our plan is to patiently wait on the arrival of our new nephew who will be arriving July 28 (if not before), and do NOTHING!!
Thank you again for all the prayers for Jackson, Papa, and our family throughout the last couple of weeks. It's been a few weeks of HI's and LO's, but we have truly been blessed to have our church, family and friends supporting us all the way.
I just wanted to say thank you for all your blogs. We really appreciate your prayers and concerns. I am SO glad Jackson is doing so well. I like reading up on his improvements. I'm glad to see he doesn't get winded. That was one thing I noticed with Noah just going up our stairs. We pray for Jackson's continuous improvements. We look forward to meeting his goals.
ReplyDeleteThe Howard Family
Thank you for being an inspiration and encouragement to other HLHS moms such as myself. We found out our son's diagnosis at 20 weeks, almost 6 weeks ago. We're grateful to have the time to plan for his arrival and first surgery. I have been so very encouraged by other HLHS families and have been reading every blog I come across to try to get a good idea of the different things we can expect once our son Chase is born in October. Thanks again for blogging your story and for sharing your sweet boy's journey with the rest of us.
ReplyDeleteKathy